PTEN Hamartoma Tumor Syndrome Patient Registry: Cookie Policy

COOKIE POLICY (Version 1.2)
Last updated June 15, 2020

This Cookie Policy explains how Beneufit, Inc.(Company", "we", "us", and "our") uses cookies and similar technologies to recognize you when you visit the patient registry at https://ptenregistry.org, ("Websites"). It explains what these technologies are and why we use them, as well as your rights to control our use of them. In some cases we may use cookies to collect personal information, or that becomes personal information if we combine it with other information.

What are cookies?
Cookies are small data files that are placed on your computer or mobile device when you visit a website. Cookies are widely used by website owners in order to make their websites work, or to work more efficiently, as well as to provide reporting information.
Cookies set by the website owner (in this case, Beneufit, Inc.) are called "first party cookies". Cookies set by parties other than the website owner are called "third party cookies". Third party cookies enable third party features or functionality to be provided on or through the website (e.g. like advertising, interactive content and analytics). The parties that set these third party cookies can recognize your computer both when it visits the website in question and also when it visits certain other websites.

Why do we use cookies?
We use only cookies for several reasons. Some cookies are required for technical reasons in order for our Websites to operate, and we refer to these as "essential" or "strictly necessary" cookies. We also use cookies to improve sire performance and usability.
The specific types of first party cookies served through our Websites and the purposes they perform are described below (please note that the specific cookies served may vary depending on the specific Online Properties you visit).

How can I control cookies?
We only use essential and performance cookies for our Websites. Essential cookies cannot be rejected as they are strictly necessary to provide you with services.
You have the right to decide whether to accept or reject cookies. You may set or amend your web browser controls to accept or refuse cookies. As the means by which you can refuse cookies through your web browser controls vary from browser-to-browser, you should visit your browser's help menu for more information.

Essential Website Cookies:
These cookies is strictly necessary to provide you with services available through our Websites and to use all of its features, such as account, language features.

    First Party Cookie: Required for account access and associated features.

  • Category: Necessary (Necessary cookies help make a website usable by enabling basic functions like page navigation and access to secure areas of the website. The website cannot function properly without these cookies.)
  • Cookie Name: PHPSESSID
  • Provider: https://ptenregistry.org
  • Type: HTTP
  • Expiry: Session
  • Purpose: Preserves user session state across page requests.
  • Initiator: Webserver
  • Source: https://ptenregistry.org
  • Data is sent to: United States
Performance Cookies:
Performance cookies, which are sometimes called analytics cookies, collect information about your use of this Site and enable us to improve the way it works. For example, performance cookies show us which are the most frequently visited pages on the Site, allow us to see the overall patterns of usage on the Site, help us record any difficulties you have with the Site.

    Google Analytics
    We have integrated the component Google Analytics (with anonymization function) on this website.
    Google Analytics is a web analytics service. Web analysis is the gathering, collection and analysis of data about the behavior of visitors to websites. Among other things, a web analysis service collects data on which website a data subject has come to a website from (so-called referrers), which subpages of the website were accessed or how often and for which period of time a subpage was viewed. A web analysis is mainly used to optimize a website and for the cost-benefit analysis of Internet advertising.
    The operator of the Google Analytics component is Google Inc., 1600 Amphitheatre Pkwy, Mountain View, CA 94043-1351, USA.
    Google Analytics uses cookies. The information generated by the cookie about your use of this website is usually transmitted to a Google server in the USA and stored there. Google might transfer the personal information collected via this technical procedure to third parties.
    As IP anonymization is activated on our website, your IP address will be shortened by Google within Member States of the European Union or other states in agreement with the European Economic Area. Only in exceptional cases, the full IP address is sent to and shortened by a Google server in the USA. On behalf of the operator of the website, Google will use this information to evaluate your use of the website, compile reports on website activity and to provide further services related to website and internet use to us. The IP address transferred through your browser to Google Analytics will not be combined with other data held by Google.
    In addition, this website uses the Analytics feature UserID to track interaction data. This User ID will be additionally anonymized and encrypted and will not be linked with other data.
    You can prevent the storage of cookies by a corresponding setting of your browser software; however, please note that if you do this, you may not be able to use all the features of this website to the fullest extent possible.

  • Category: Performance (Performance cookies help us improve a web site's performance and usability.)
  • Cookie Name: _ga
  • Provider: https://ptenregistry.org
  • Type: HTTP
  • Expiry: 2 Years
  • Purpose: Registers a unique ID that is used to generate statistical data on how the visitor uses the website.
  • Initiator: Inline Script
  • Source: https://ptenregistry.org
  • Data is sent to: United States

  • Category: Performance
  • Cookie Name: _gat
  • Provider: https://ptenregistry.org
  • Type: HTTP
  • Expiry: 1 Year
  • Purpose: Used by Google Analytics to throttle request rate.
  • Initiator: Inline Script
  • Source: https://ptenregistry.org
  • Data is sent to: United States

  • Category: Performance
  • Cookie Name: _gid
  • Provider: https://ptenregistry.org
  • Type: HTTP
  • Expiry: 1 Day
  • Purpose: Registers a unique ID that is used to generate statistical data on how the visitor uses the website.
  • Initiator: Inline Script
  • Source: https://ptenregistry.org
  • Data is sent to: United States

  • Category: Performance
  • Cookie Name: collect
  • Provider: google-analytics.com
  • Type: Pixel
  • Expiry: Session
  • Purpose: Used to send data to Google Analytics about the visitor's device and behavior. Tracks the visitor across devices and marketing channels.
  • Initiator: Inline Script
  • Source: https://google-analytics.com/
  • Data is sent to: United States

    • What about other tracking technologies, like web beacons?
    Web beacons (sometimes called "tracking pixels" or "clear gifs") are tiny graphics files that contain a unique identifier that enable us to recognize when someone has visited our Websites or opened an e-mail including them. This allows us, for example, to monitor the traffic patterns of users from one page within a website to another, to deliver or communicate with cookies, to improve site performance. In many instances, these technologies are reliant on cookies to function properly, and so declining cookies will impair their functioning. We currently do not use web beacons but may decide to to anonymously track user behavior in the future in an effort to improve site perfomance and usability.

    Do you use Flash cookies or Local Shared Objects?
    We do not use so-called "Flash Cookies" (also known as Local Shared Objects or "LSOs") to, among other things, collect and store information about your use of our services, fraud prevention and for other site operations.

    Do you serve targeted advertising?
    We do not use thirt-party cookies or serve advertising at any time on our Websites.

    How often will you update this Cookie Policy?
    We may update this Cookie Policy from time to time in order to reflect, for example, changes to the cookies we use or for other operational, legal or regulatory reasons. Please therefore re-visit this Cookie Policy regularly to stay informed about our use of cookies and related technologies.
    The date at the top of this Cookie Policy indicates when it was last updated.
    Where can I get further information?
    If you have any questions about our use of cookies or other technologies, please email us at privacy@beneufit.com or by post to:
    Beneufit, Inc. PO Box 401 Kentfield, CA 94914 United States.
    © 2024 The PTEN Hamartoma Tumor Syndrome Foundation, All Rights Reserved.